QUOTE:
Seven hundred thousand people who have dementia in this country are not heard. I'm fortunate; I can be heard. Regrettably, it's amazing how people listen if you stand up in public and give away $1million for research into the disease, as I have done.

Why did I do it? I regarded finding I had a form of Alzheimer’s as an insult and decided to do my best to marshal any kind of forces I could against this wretched disease.

I have posterior cortical atrophy or PCA. They say, rather ingenuously, that if you have Alzheimer's it's the best form of Alzheimer's to have. This is a moot point, but what it does do, while gradually robbing you of memory, visual acuity and other things you didn't know you had until you miss them, is leave you more or less as fluent and coherent as you always have been.

I spoke to a fellow sufferer recently (or as I prefer to say, "a person who is thoroughly annoyed with the fact they have dementia") who talked in the tones of a university lecturer and in every respect was quite capable of taking part in an animated conversation.

Nevertheless, he could not see the teacup in front of him. His eyes knew that the cup was there; his brain was not passing along the information. This disease slips you away a little bit at a time and lets you watch it happen.